I KNEW there was something I was forgetting! The last two weeks Amanda has gotten her methotrexate shots while she was awake! For the last 6 yrs, she would insist on having her needle while she was asleep because the thought of having it awake made her ill. A couple weeks ago, on Friday night, she asked if she could have it just before she went to bed. I said "Absolutely" and got everything ready. I gave it to her and she just looked at me and said "Is that it???". I think she'd truly forgotten how to have it awake and had exaggerated memories of how bad it was! She laid down and fell asleep with no problems. I'm so proud of her! This was always something that really bothered her and she's overcome it!!
Michelle
Tuesday, December 4, 2007
Woefully behind in posting!...
Well, there hasn't been much to report - good or bad - so I'm woefully out of date on my blog!
Amanda is doing OK - still not 100% but better. She finds she has some discomfort towards the end of her four weeks between treatments. She went for an MRI last week - the right side of her jaw has been giving her trouble so the rheumatologist would like to see if it's moved to the other side. Amanda was pretty freaked to do it but, with her usual grace and courage, she got through it just fine. I'll touch base with the pediatrician on Friday to see if he got the results yet.
Other than that, just trying to get ready for the Christmas holidays! We have a pretty good blanket of snow on the ground now so hopefully it sticks around - no green Christmases here!
The one tidbit of news I have -- Amanda has been asked to be in a video the Arthritis Society is commissioning to raise money in a new fundraising initiative called The Competition for a Cure breakfast. We'll have a video crew following us around all day Friday - it's her treatment day so a good day for a photo op! She's totally psyched to be in it!!
Michelle
Amanda is doing OK - still not 100% but better. She finds she has some discomfort towards the end of her four weeks between treatments. She went for an MRI last week - the right side of her jaw has been giving her trouble so the rheumatologist would like to see if it's moved to the other side. Amanda was pretty freaked to do it but, with her usual grace and courage, she got through it just fine. I'll touch base with the pediatrician on Friday to see if he got the results yet.
Other than that, just trying to get ready for the Christmas holidays! We have a pretty good blanket of snow on the ground now so hopefully it sticks around - no green Christmases here!
The one tidbit of news I have -- Amanda has been asked to be in a video the Arthritis Society is commissioning to raise money in a new fundraising initiative called The Competition for a Cure breakfast. We'll have a video crew following us around all day Friday - it's her treatment day so a good day for a photo op! She's totally psyched to be in it!!
Michelle
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